{"id":2292,"date":"2020-04-01T11:14:24","date_gmt":"2020-04-01T11:14:24","guid":{"rendered":"http:\/\/www.gronenonline.com\/_gronen1\/?p=2292"},"modified":"2020-04-01T11:14:24","modified_gmt":"2020-04-01T11:14:24","slug":"privacy-in-the-age-of-a-pandemic","status":"publish","type":"post","link":"http:\/\/www.gronenonline.com\/_gronen1\/2020\/04\/01\/privacy-in-the-age-of-a-pandemic\/","title":{"rendered":"Privacy In The Age Of A Pandemic"},"content":{"rendered":"<p><strong><span style=\"font-size: 14pt;\">Guest Blogger:<\/span><\/strong><\/p>\n<p><strong>Kirsten Martin<\/strong><\/p>\n<p><strong><em>Lindner-Gambal Associate Professor of Business Ethics<\/em><\/strong><\/p>\n<p><strong><em>George Washington University.\u00a0 <\/em><\/strong><\/p>\n<p><span style=\"font-size: 14pt;\">If we are going to end social distancing, we will need to find a way to know who has COVID-19 and where they are.\u00a0 Temperature and symptom tracking, testing, and contact tracing are regularly mentioned as a part of long-term solutions.<a href=\"#_ftn1\" name=\"_ftnref1\">[1]<\/a>\u00a0 This is a lot of data about individuals that will be tracked and reported by businesses and government agencies. \u00a0Actions will be taken based on this data \u2013 individuals will be told to quarantine, businesses will be told to shut down, communities will be told to stay at home.<\/span><\/p>\n<p><span style=\"font-size: 14pt;\">Designing a data collection system that is trusted and regulated will be key for a sustainable solution.\u00a0 As a business school professor, regulation is not my answer to most problems.\u00a0 However, the intimacy of the data needed and the breadth of the collection required will necessitate strict regulations since we do not have trusted organizations to do this well (to be blunt). Data about individuals is covertly captured and aggregated by unknown companies. So it is not surprising to find location data aggregators and social networking companies suddenly able to provide the travel patterns of individuals to track the virus.<a href=\"#_ftn2\" name=\"_ftnref2\">[2]<\/a> \u00a0\u00a0\u00a0\u00a0<\/span><\/p>\n<p><span style=\"font-size: 14pt;\">Let\u2019s consider what will <u>not<\/u> work:\u00a0 having apps leak our location data to commercial data aggregators who maintain a dataset of identifiable location history data that is for sale; or having businesses collect our temperatures and symptoms \u2013 as employees or as customers \u2013 and then using that data to report pandemic concerns as well as keeping the data for later marketing or employment decisions.<a href=\"#_ftn3\" name=\"_ftnref3\">[3]<\/a>\u00a0<\/span><\/p>\n<p><span style=\"font-size: 14pt;\">Two rules to keep in mind when planning data collection:<\/span><\/p>\n<ol>\n<li><span style=\"font-size: 14pt;\">We regularly share information with a person or organization with specific privacy expectations around how that information will be used and shared (Martin 2016; Nissenbaum 2010). Data collected to track a pandemic is no different.<\/span><\/li>\n<li><span style=\"font-size: 14pt;\">If privacy expectations are not respected, then people stop sharing their data or start subverting the data collection system. In other areas of life, we give false information or use technology to block trackers.\u00a0 However, tracking a possible outbreak of a virus is a situation where we need better, accurate, less biased data collection.\u00a0<\/span><\/li>\n<\/ol>\n<p><span style=\"font-size: 14pt;\">Fortunately, we have done this before.\u00a0 Consider the Census.\u00a0 We generally share information about ourselves and our homes with an understanding that the information will be protected within the Census Bureau.\u00a0 However, Census data is heavily regulated.\u00a0 Within the Census Bureau, only small number of people have access to the individualized data \u2013 that data where you and I can be identified.\u00a0 Otherwise, researchers, reporters, statisticians, economists, etc work with Census data at block or anonymized level. There are clear rules about what organizations can have access to that data.<\/span><\/p>\n<p><span style=\"font-size: 14pt;\">What this means is that data collectors, aggregators, and controllers of our location and health data need to be highly trusted and regulated organizations.\u00a0 In general:\u00a0 \u00a0<\/span><\/p>\n<ul>\n<li><span style=\"font-size: 14pt;\"><u>Collection of health data<\/u>. While medical providers are heavily regulated, medical data is not.\u00a0 If the systematic collection of temperature and COVID-19 symptoms will need to be collected widely and centralized for analysis, new laws will be required to specify that commercial organizations collecting health data for tracking infectious diseases \u2013 e.g., a store taking temperatures before letting customers or employees inside \u2013 would have limitations placed on them as to how that data can be shared and used.\u00a0<\/span><\/li>\n<li><span style=\"font-size: 14pt;\"><u>Collection of location data<\/u>. \u00a0The collection of location data should be regulated &#8212; period.\u00a0 Helen Nissenbaum and I conducted a study focused on location data collected by different organizations \u2013 family, government, commercial, employers, etc \u2013 via different methods (Martin and Nissenbaum 2020).\u00a0 Respondents found the collection of location data to make inferences about where they are and who they are with to always be a violation of privacy \u2013 no matter who collects that data.\u00a0 In fact, our study found that data aggregators were deemed the worst actor to have our location data.\u00a0<\/span><\/li>\n<\/ul>\n<p><span style=\"font-size: 14pt;\">We have a systemized collection of data at a national level with a trusted government agency that is then heavily regulated. We need to be similarly thoughtful in any systematic data collection effort to track COVID-19 or any infectious disease.\u00a0 \u00a0\u00a0<\/span><\/p>\n<p>&nbsp;<\/p>\n<p>Martin, Kirsten. 2016. \u201cUnderstanding Privacy Online: Development of a Social Contract Approach to Privacy.\u201d <em>Journal of Business Ethics<\/em> 137 (3): 551\u201369. https:\/\/doi.org\/10.1007\/s10551-015-2565-9.<\/p>\n<p>Martin, Kirsten, and Helen Nissenbaum. 2020. \u201cWhat Is It About Location?\u201d <em>Berkeley Technology Law Journal (Forthcoming)<\/em> 35 (1). https:\/\/papers.ssrn.com\/sol3\/papers.cfm?abstract_id=3360409.<\/p>\n<p>Nissenbaum, Helen. 2010. <em>Privacy in Context: Technology, Policy, and the Integrity of Social Life<\/em>. Stanford University Press.<\/p>\n<p>&nbsp;<\/p>\n<p><a href=\"#_ftnref1\" name=\"_ftn1\">[1]<\/a> McGinley, Laurie and Wan William.\u00a0 2020. Experts converge on plans for how to ease coronavirus restrictions safely.\u00a0 <em>Washington Post. <\/em>https:\/\/www.washingtonpost.com\/health\/2020\/03\/29\/coronavirus-strategy-economy-plan\/<\/p>\n<p><a href=\"#_ftnref2\" name=\"_ftn2\">[2]<\/a> https:\/\/www.wired.com\/story\/surveillance-save-lives-amid-public-health-crisis\/<\/p>\n<p><a href=\"#_ftnref3\" name=\"_ftn3\">[3]<\/a> \u00a0https:\/\/www.economist.com\/briefing\/2020\/03\/26\/countries-are-using-apps-and-data-networks-to-keep-tabs-on-the-pandemic<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Guest Blogger: Kirsten Martin Lindner-Gambal Associate Professor of Business Ethics George Washington University.\u00a0 If we are going to end social distancing, we will need to find a way to know &#8230;<\/p>\n","protected":false},"author":5,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_eb_attr":"","_mi_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0},"categories":[22],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v18.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Privacy In The Age Of A Pandemic | Gronen<\/title>\n<meta name=\"robots\" content=\"noindex, follow\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Privacy In The Age Of A Pandemic | Gronen\" \/>\n<meta property=\"og:description\" content=\"Guest Blogger: Kirsten Martin Lindner-Gambal Associate Professor of Business Ethics George Washington University.\u00a0 If we are going to end social distancing, we will 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